minus nine.

Just a quick update, a lot has been happening these past few days.  I am tired and Monday was only day minus nine.  As far as transplants go the days before the actual transplant are called the conditioning phase and they are counted backwards leading to zero (zero being the actual transplant date).  I'm really hoping this post doesn't turn into a lesson in transplant 101 (especially given my lack of knowledge on the subject).

During the conditioning phase many drugs are given to prepare the body.  Some of which are prophylactic (the just in case this happens we'll give this ahead of time) drugs. Others are the Chemotherapy drugs (the nurse has to double up her gloves and wear a plastic suit while handling type of drugs).  Kinda makes you wanna vomit thinking that she has to double glove and pretty much wear a hazmat suit while she pumps them into your tiny toddler. Monday was the test dose of the first Chemo drug.  Kiah was miserable all day and had a bit of a fever.

Yesterday he had an elevated temperature but no fever.  The Ativan was making him loopy and his emotional stability was that of a thirteen year old girl but today was much better. He seemed much more himself, playing basketball and keeping us busy.  Due to the initial fever and a few other questionable symptoms he has had they decided to give him a break for a couple days while they run cultures to rule out anything else going on.  If all comes back negative we will continue with day minus eight tomorrow.  Leave it to my boy to get sick right before transplant, as if negative days aren't daunting enough…  Here's hoping for minus eight tomorrow.


having not taken any photos of the tween my toddler turned into… thought I'd post a couple pics from just before we left… ;)